About CareEx

What is CareEx?

CareEx is a research project funded by the National Institute on Aging that aims to understand the experiences of grandchildren, siblings, nieces/nephews, and step-family caregivers of relatives with dementia. CareEx uses telephone interviews to learn about family caregivers and their service use, needs and challenges. The findings of this project will be used to develop more effective services and programs to support family caregivers and enhance the quality of life of persons with dementia. 

Who Was Eligible to Participate in CareEx

Individuals were eligible to participate in the CareEx project if their relative with dementia did not live in an assisted living facility or nursing home and they:

• Were 18 years of age or older;
• Helped their relative with dementia with everyday tasks;
• Were the grandchild, sibling, niece/nephew, or step-family member (any relationship) of a person with dementia;
• Resided in Virginia or a surrounding state; and
• Had face-to-face contact with the person with dementia at least three days per week.