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CareEx: Extended Family Caregivers of Persons with Dementia

This project aims to understand the experiences, needs, and challenges of grandchildren, brothers, sisters, nieces/nephews, and step-family caregivers of relatives with dementia through telephone interviews.

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Participant Testimonial reads, "Participating was very easy. I found it introspective. I did not realize how little time I took for myself. I sat down with my family and we mapped out a way for everyone to help me out on a more regular basis."
Participant Testimonial reads, "It felt good to have a person to share with whom didn't criticize. It made me think a lot there is no wrong answer. Every day is different. I am glad these folks take time to do these studies. May not effect our loved one, I feel it will in the future."
Participant Testimonial reads, "I have already referred a friend to the study and how the interviews proceed. The questions are well thought out and the labelling of emotions were thought provoking for me. Lesley was a joy and carefully listened."

To view or download the CareEx Flier, click here.


CareEx is funded by the National Institute on Aging and is approved by the Virginia Tech IRB. Grant #R01AG069818; IRB# 20-742